1123 sats \ 6 replies \ @itsybitsybtc 21 Jan 2023 \ on: Will Nostr put people back in control of their data? nostr
What a great post, thank you so much for this. Something I have been thinking about is the storage and sharing of medical records. Freeing this from the burden of government control (who doesn't even want to do it in the first place) will reduce an immense amount of friction in the medical industry. It will increase privacy and freedom for Patients while reducing costs and administrative burden on Providers. Nostr is probably the single most interesting technology right now but people are distracted by AI and shitcoinery.
What other projects do you all know about this space? (Freeing data for better innovation in health)
reply
I don't know of any other projects in the space so thank you for linking me to a few, it got me a lot of afternoon reading. I am connected to a lot of physicians and private equity in the medical industry and this is something I only began seriously thinking about days ago.
Medical Records are something I figured many people are trying to cram into a blockchain project. And indeed, lots of ethereum based projects and other overly complicated applications and platforms. They are missing the point I think.
Nostr has a ton of velocity right now and it clicked for me that this could be the solution. The real issue with doing medical records is authentication, ux, and working with existing standards. It must be able to follow the standardized code system that is connected to the convoluted billing system of the medical industry. More importantly, the UX has to be there. It shouldn't be complicated at all, it should be one of the easiest transactions to take place in any visit for both parties.
I don't think its really been possible until what feels like yesterday.
reply
I think there is still big missing piece: solving privacy. Nostr is public broadcast. People won't be comfortable broadcasting their medical data to the world, it has too many negative implications for them, ie insurance company charging more if they know.
Differential Privacy is interesting for this. I think it could help people control how sensitive insights can someone learn, rather than who gets access to their data. But I don't think its solved problem.
reply
https://www.openmined.org/ -- another relevant project, open source
reply
Doc.ai was trying something more directly with people (rather than training models across hospitals), but I haven't heard much about it recently so probably didn't go anywhere.
reply
Totally. There is a lot of people motivated to innovate in health and so much need, but it is hard problem to tackle because its one of the most regulated industries. That's why we might need to demonstrate these ideas really work in some easier domains.
For instance BitFount is a startup in this area: federated learning mostly focusing on health.
https://www.bitfount.com/
reply